I recently joined the Digial Health group on LinkedIn, led by Paul Sonnier, who has amassed a huge group of followers on Twitter and LinkedIn. I have found it to be one of the best places for bleeding edge health technology news and great discussions! Paul recently posed the question, "What is the biggest human benefit derived from the use of digital health solutions?" There were five categories to choose from: Disease diagnosis, disease prediction (especially genomics), disease management, disease prevention and reduced radiation exposure (imaging). The winner by a fairly wide margin was disease management, which garnered 49% of the votes. Coming in second? Disease prevention with 31% of the vote.
The discussion that accompanied the poll was very rich and worth checking out. My vote was cast for disease prevention. In my mind, if we can finally give individuals the tools to more proactively manage and maintain their health, we won't need to focus so heavily on disease diagnosis. What do you think? Which item would you have chosen?
For an additional reference, check out this blog written by Paul about the results of his poll:
http://popperandco.com/2012/07/poll-results-what-is-the-single-greatest-health-benefit-afforded-by-digital-health-solutions/
It's inevitable. At some point, you or your parents, spouse, kids or friends are going to be a "patient." I hope by sharing my experience, you will be confident, courageous and in control as you navigate a system that's really not designed around you.
Thursday, July 19, 2012
Tuesday, July 3, 2012
Relief
Relief is a common feeling – one can be relieved that they
make it to work on time when the traffic is bad, or be relieved when a child
arrives home safely 15 minute after curfew. We can get relief from a headache
with a Tylenol or Advil, and relief from hunger by eating a meal.
But on Friday of last week, I learned what relief really
feels like. It’s an overwhelming feeling that impacts every cell in your body –
it’s like the world’s biggest sigh; or the removal of the heaviest load you
have ever carried. As it passes over you, it incites you to cry huge tears of
joy, and then makes you want to lay down on the floor to be absorbed into the
earth. It is a freedom that I have never, not once, in my 51 years on this
earth, felt so intensely.
Last Friday morning I had blood work and CTs of the chest,
abdomen and pelvis. This was in follow up to scans 8 weeks ago that showed some
abnormality in my right lung, which the radiologist and radiation oncologist
suspected was the remnants of an infection, but they could not rule out an
underlying malignancy. While I had a gut feeling that things were going to be
good (because I have felt so good and have been taking pristine care of
myself), I had received several “signals” throughout the day that perhaps that
would not be the case. And so, as Bill and I sat in the waiting room for the
physician to call us back, I could not help but be exceptionally worried, to
the point of hands shaking, stomach twisting, room spinning.
But relief was mine when my nurse practitioner came through
the waiting room and stopped to tell me on the sly that my physician was going
to put me in a room to “tell you the good news, your scans are
completely clean.” As the words left her lips, I can’t do justice to describe
the intensity of relief I felt. This is a moment that I will hang onto for the
rest of my life! It’s the perfect opposite of the moment when I heard the
words, “It’s cancer.”
I am not naive enough to believe that this is the end of my
journey – in fact, it is the beginning of the hardest part – survivorship. The
constant temptation to wonder if something is going on, or if the cancer is
back is sometimes hard to ignore. But I will take this victory with gratitude
and in it find the strength to continue my efforts towards perfect health.
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